Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies

Josephine Johnston, LLB, MBHL, Director of Research and Research Scholar, The Hastings Center Affordable genome sequencing has led some to suggest that all newborns be sequenced at birth, setting the stage for a lifetime of medical care and self‐directed preventive actions tailored to each child’s genome. As part of the NSIGHT studies, funded by NIH, this...

Free

Ethics of Workarounds in Health Care with Hastings Center Scholar Nancy Berlinger

Robert H Lurie Medical Research Center 303 E. Superior, Chicago, IL, United States

The Montgomery Lectures series addresses diverse topics within bioethics and the medical humanities. Presenters are faculty, affiliates, and alumni of the Medical Humanities & Bioethics Graduate Program--along with a few special guests. The lectures run every Thursday from noon to 12:45pm during The Graduate School's fall, winter, and spring quarters. They are open to students,...

Free

Vaccine Access, Vaccine Hesitancy: Challenges to Herd Immunity

Online

If the United States is to achieve herd immunity, at least 75-85% of the population will need to be vaccinated, yet there are many different kinds of barriers to overcome. Some Americans are reluctant or wish to wait, because they distrust government or the safety of the vaccines or believe in widespread conspiracy theories. Views...

Questioning Cure: Disability, Identity, and Healing

Online

Should cure be the ultimate aim of health care? Sometimes aiming at cure entails trying to fix disability rather than enabling disabled people to flourish. Sometimes it obscures the goal of healing. And sometimes aiming at cure entails failing to distinguish between disease and difference. In this webinar, disabled writers and educators Anand Prahlad, Ann...

Medical Interfaces with Emotion AI: Shaping Public Narratives and Perceptions of Nonverbal Patients with Degenerative Diseases

Online

Hastings Center PMRA Isabel Bolo is presenting, "Medical Interfaces with Emotion AI: Shaping Public Narratives and Perceptions of Nonverbal Patients with Degenerative Diseases" at the CEPE/IACAP Joint Conference 2021: The Philosophy and Ethics of Artificial Intelligence  

Do Justice and Equity Concerns Bolster or Hinder the Case for the Use of Gene Drive Applications?

Online

Hastings Center scholar Carolyn Neuhaus is on one panel “Do Justice and Equity Concerns Bolster or Hinder the Case for the Use of Gene Drive Applications?” in a series of five panel deliberations entitled “Unsettled Ethical Issues in Gene Drive Research” through the Forum, a collaboration between The Foundation for the NIH (FNIH) GeneConvene Global Collaborative and...

Short Course on Public Deliberation and Gene Editing in the Wild

Online

Hastings Center scholars Michael Gusmano and Karen Maschke present a Short Course on Public Deliberation and Gene Editing in the Wild for attendees of Annual Meeting of the American Political Science Association via zoom.   Emerging technologies for the genetic modification of organisms present unprecedented opportunities to alter wild populations of organisms, from microbes to...

“BINOCULARITY: A Tool for Comprehending Persons in Depth”

Online

Hastings Center senior research scholar Erik Parens will present “BINOCULARITY: A Tool for Comprehending Persons in Depth” at the John Dossetor Health Ethics Centre at the University of Alberta. It is plain that, to exhibit care for persons, we need to respect them as persons. I will suggest that, to show respect, we should aspire...

Addressing Racism in Medical Research & Publishing

Online

Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for story ideas, the editors of those journals have an indispensable role in identifying and eliminating racism in the review and publication of research. What antiracist steps are leading journals taking? What more should be done? What kinds of cues can help journalists recognize racial bias in a research article?

The Role of Choice in Death and Dying in Late Life

Online

In this symposium, we will discuss the changing attitude towards death and dying in late life, bringing together insights from different disciplines, such as sociology, philosophy, (bio)ethics and thanatology. The question will be raised: what is the impact of the growing emphasis on individual choice regarding death and dying on the way we – as individuals and as a society – live towards the end of life?

We Belong To One Another: Disability and Family Making

Online

Ableism frames disability as a “family problem,” in which disability is a tragedy for nondisabled family members and a disqualifying factor when disabled people want to build families of their own. But, to the contrary, disability can create new opportunities for flourishing by challenging traditional notions of what family is and should be. In this...

Love and Loss with Amy Bloom

Online

Bestselling author Amy Bloom‘s world was altered forever when an MRI indicated that her husband Brian had Alzheimer’s disease. Together, led by Brian, Brian and Amy made the decision to travel to Switzerland to access an assisted dying process unavailable in the United States. In this discussion with Hastings Center president Mildred Solomon, Bloom will talk about her new book, In Love: A Memoir of Love and Loss,...

Anti-Black Racism, Health & Health Care: A Reckoning—and a Path Forward

A new report calls on the field of bioethics to take the lead in efforts to remedy racial injustice and health inequities in the United States. Join the editors of the report, “A Critical Moment in Bioethics: Reckoning with Anti-Black Racism Through Intergenerational Dialogue,” for a virtual discussion with Michele Goodwin, Chancellor’s Professor and Director,...

Chimeras (But Don’t Call Them Chimeras): An Introduction to the Ethics & Policy Debate

Online

Josephine Johnston, Director of Research at The Hastings Center, and Dr. Insoo Hyun, Director of the Center for Life Sciences and Public Learning at the Museum of Science in Boston will present, “Chimeras (But Don't Call Them Chimeras): An Introduction to the Ethics and Policy Debate” at the September 15 PRIM&R webinar.

Aging in a Place: Perspectives on the Meanings of “Home” and “Community” from Age-focused Researchers & Practitioners

Online

Everyone ages in some "place," or a series of places. This event will explore the concept of place from the perspectives of housing research, affordable housing development and modification, and dementia-friendly community planning. Our aim is to connect humanistic concepts with socially engaged research and practice on planning and housing for aging societies, to support...

Ethical & Regulatory Considerations in Xenotransplantation Clinical Trials: Patient Selection, Equity in Access, & Wait Listing

Online

The webinar aims to provide participants with the ethical, regulatory, and psychosocial context to address the following questions: - What strategies should be used to minimize clinical trial investigators’ conflict of interest in recruiting patients into xenotransplant clinical trials? - How should potential participants be notified about the option of participating in a xenotransplant clinic...

How I Became Disabled

https://www.genome.gov/event-calendar/irreducible-subjects-disability-and-genomics-in-the-past-present-and-future

Rosemarie Garland-Thomson, Hastings Center senior advisor and fellow, will be speaking on “How I Became Disabled” at The National Human Genome Research Institute (NHGRI) and The State University of New York at Buffalo Center for Disability Studies two-day symposium entitled, “Irreducible Subjects: Disability and Genomics in the Past, Present and Future."

Housing & Health Equity for Older Adults: Findings from the COVID-19 RECAPP Report

In addition to its devastating effects on health and mortality, the COVID-19 pandemic produced a complex and interconnected set of social challenges across the US. Older adults living in the community faced social isolation and disruptions in access to food, medical care, and other goods and services during stay-at-home orders. In response, organizations that support...

AI & Health Bioethics Summit

Online

The first Google Health Bioethics Summit 2022 will be hosted in collaboration with The Hastings Center.  This forum will bring together experts from across academia and industry to explore the most pressing ethical issues in artificial intelligence and health care, share knowledge, and build the foundation for the development of standards, policies, and best practices....

Advancing Housing & Health Equity for Older Adults: Learning from Aging in Place Initiatives

Online

In the Covid moment, community-based initiatives throughout the United States pivoted to meet the needs of older adults at home. This virtual event explores the findings of a new report, a collaboration between The Hastings Center and the Joint Center for Housing Studies at Harvard, focusing on perspectives and lessons from diverse initiatives and networks...

Bioethics Founders’ Award & David Roscoe Essay Award

Bioethics Founders’ Award Recipients: Anita L. Allen, the Henry R. Silverman Professor of Law and professor of philosophy at the University of Pennsylvania Carey School of Law Farhat Moazam, Professor and founding chairperson of the Centre of Biomedical Ethics and Culture of the Sindh Institute of Urology and Transplantation in Pakistan. David Roscoe Essay Award...

A Critical Moment in Bioethics

Oregon Convention Center 777 NW Martin Luther King, Jr. Blvd, Portland, OR, United States

A new report calls on the field of bioethics to take the lead in efforts to remedy racial injustice and health inequities in the United States. Join Hastings Center senior advisor Faith Fletcher, Sadler Scholars advisor Keisha Ray, and other editors of the report, “A Critical Moment in Bioethics: Reckoning with Anti-Black Racism Through Intergenerational...

Self-managed Medication Abortion: Changing the Landscape of Abortion Access Outside of the Law

Online

Hastings Center Senior PMRA Margaret Matthews will present a paper on "Self-managed Medication Abortion: Changing the Landscape of Abortion Access Outside of the Law", during the ASBH Annual Conference in Portland, Oregon session: Reframing Our Concepts: "Self-Managed Abortion," "Good Death," "Management Conditions". 

Communicating Ethical Challenges in Crises: Bioethics With Bigger Impact

Online

The chaos that enveloped the Covid-19 response and the loss of trust in experts has laid bare the need for a shift in communicating the moral questions that confront our society. Helping the public think through daunting public health issues and understand the reasons for life and death policies is critical – we must communicate...

Helping Older Americans During the Pandemic

Online

This event, the third in a four-part series, will explore some of the key findings in Advancing Housing and Health Equity for Older Adults: Pandemic Innovations and Policy Ideas, a collaboration with The Hastings Center. Panelists will share new research and examples of how service coordinators leveraged community resources and their own creativity to ensure...

Toward New Narratives About Aging in Place

Online

Most older Americans want to “age in place,” yet many lack the “place” they need. Land use restrictions or local resistance to affordable, accessible homes stymie efforts to build places that work for people as they age or who have disabilities. Private-market options geared to wealthy adults are not the solution for the typical, moderate-income...

Wrestling with Social and Behavioral Genomics

Online

Social and behavioral genomics research uses huge sets of genetic data in attempts to shed light on phenotypes from smoking and eating behaviors, to psychiatric disorders, to sexuality and educational attainment. How should we think about the risks of such research, including the risks that its results can be weaponized or lead to policy fatalism?...

The Promise and Perils of Social and Behavioral Genomics

Online

While many promise that the study of genomic variants can help us better understand ourselves and our world, others are concerned that recent scientific developments have helped fuel the rise of harmful ideologies, such as white supremacy and antisemitism. The scientific community must consider whether the misappropriation of genetic evidence has played any role in...

Unpacking Neglected Social Factors to Ensure Impact

Online

Bioethics With Bigger Impact It is imperative to understand the social and ethical roots of our present conversations about health inequalities, in order to partner intelligently with the public, researchers, and policymakers for real impact. Since its inception, the field of bioethics has worked in core concepts of justice and equity, and considerations of social and...

National Health Equity Grand Rounds

Online

Join us for the inaugural National Health Equity Grand Rounds event, co-sponsored by The Hastings Center, History of Racism in U.S. Health Care: Root Causes of Today’s Hierarchy and Systems of Power, on Tuesday, February 7, 2-3:30 PM ET. In addition to highlighting root causes of present-day health inequities, speakers will explore opportunities to advance equity through individual,...

Should We Change “Chimeric” Human-Animal Research?

SPECIAL REPORT: Creating Chimeric Animals: Seeking Clarity on Ethics and Oversight Crossing species boundaries by inserting human cells into (nonhuman) animals for research purposes promises to yield enormous benefits, including better models of human disease and ultimately sources of tissues and organs suitable for transplantation into humans. Yet there are ethical questions about this type...

Toward Navigating Danger and Promise Together–Editing the Human Genome

A frank look at the ethics of breakthrough genetic technologies TRANSCRIPT A just-concluded summit looked at the state of human genome editing, where the scandal of China's CRISPR babies was fresh in the minds of many. But attendees also heard of the exciting promise that gene editing therapy holds for sickle cell disease, a condition...

The Battle for Your Brain

At the intersection of neuroscience and artificial intelligence lies a wealth of opportunity for business, labor, and society at large. Yet along with progress comes a host of legal and ethical dilemmas. Watch Nita Farahany and Mildred Solomon consider what our neurological information is worth, and the implications of making it available to corporations, work places...

Confronting Climate Change in a Perfect Moral Storm

Online

Are ethicists asleep at the wheel in protecting planetary health? Global warming is intertwined with persistent problems of social justice, systemic racism, the U.S. history of colonial oppression, and the dominance of capitalist consumer norms over health and health care. Why are these bioethical injustices? Why are these issues still not a central concern for many?...

In Vitro Derived Human Gametes as a Reproductive Technology: Scientific, Ethical, and Regulatory Implications

Online

The National Academies will convene a workshop to explore the in vitro derivation of human gametes (eggs and sperm) from embryonic or induced pluripotent stem cells, and its potential impact on research and reproductive medicine with Joel Michael Reynolds, Hastings senior advisor and fellow.

EVENT: Wrestling with Social & Behavioral Genomics

Online

Research on the genetic contributions to human social and behavioral characteristics, or phenotypes, including risk-taking, income, and educational attainment, is increasing. And it is both potentially beneficial and deeply controversial, given the long history of attempts to use claims about genetic differences to advance unjust social policies and ongoing concern about their misuse.  What are...