It is 2 a.m. I am very sick. I am not sure how long I have
been hospitalized. The last two or three days have been a blur, a parade of
procedures and people. I had a bloody debridement for a severe, large, and
grossly infected stage four wound—the first wound I have had since I was
paralyzed in 1978. I know the next six months or longer are going to be
exceedingly difficult. I will be bedbound for months, dependent upon others for
the first time in my adult life. As these thoughts are coursing through my
mind, a physician I have never met and the registered nurse on duty appear at
my door. As they put on their gowns I am weary but hopeful. Surely there is
something that can be done to stop the vomiting. The physician examines me with
the nurse’s help. Like many other hospitalists that have examined me, he is
coldly efficient. At some point, he asks the nurse to get a new medication.
What transpired after the nurse exited the room has
haunted me. Paralyzed me with fear. The hospitalist asked me if I understood
the gravity of my condition. He grimly told me I would be bedbound for at least
six months and most likely a year or more. That there was a good chance the
wound would never heal. If this happened, I would never sit in my wheelchair. I
would never be able to work again. Not close to done, he told me I was looking
at a life of complete and utter dependence. He went on to tell me I was on
powerful antibiotics that could cause significant organ damage. He informed me
I had the right to forego any medication, including the lifesaving antibiotics.
If I chose not to continue with the current therapy, I could be made very
comfortable. I would feel no pain or discomfort at all. Although not explicitly
stated, the message was loud and clear. I can help you die peacefully.
It is 2 a.m. I am very sick. I am not sure how long I have
been hospitalized. The last two or three days have been a blur, a parade of
procedures and people. I had a bloody debridement for a severe, large, and
grossly infected stage four wound—the first wound I have had since I was
paralyzed in 1978. I know the next six months or longer are going to be
exceedingly difficult. I will be bedbound for months, dependent upon others for
the first time in my adult life. As these thoughts are coursing through my
mind, a physician I have never met and the registered nurse on duty appear at
my door. As they put on their gowns I am weary but hopeful. Surely there is
something that can be done to stop the vomiting. The physician examines me with
the nurse’s help. Like many other hospitalists that have examined me, he is
coldly efficient. At some point, he asks the nurse to get a new medication.
What transpired after the nurse exited the room has
haunted me. Paralyzed me with fear. The hospitalist asked me if I understood
the gravity of my condition. He grimly told me I would be bedbound for at least
six months and most likely a year or more. That there was a good chance the
wound would never heal. If this happened, I would never sit in my wheelchair. I
would never be able to work again. Not close to done, he told me I was looking
at a life of complete and utter dependence. He went on to tell me I was on
powerful antibiotics that could cause significant organ damage. He informed me
I had the right to forego any medication, including the lifesaving antibiotics.
If I chose not to continue with the current therapy, I could be made very
comfortable. I would feel no pain or discomfort at all. Although not explicitly
stated, the message was loud and clear. I can help you die peacefully.